We got home right after the kids got home from school yesterday and we surprised them. The second we walked in the door Ethan broke down and sobbed. I had to hold him on my lap for a long time. It was as if he was holding it all in until the second we were home and safe. He then continued to hug me all night long. He went to touch one of Jadens "war wounds" and Jaden said no and started crying so then Ethan started crying because he felt so bad for Jaden. He told me he loved me about 10 times last night and said I was the best mom in the world a few times as well. Ashley just sat by Jaden very quietly through out the night. Sal had surprised us all with some gifts to open. So we had a very good time with each other last night and we look forward to this weekend to just hang out.
Today Jaden has been very mellow and quiet. A Home Care nurse came this morning and Jaden was very scared of her coming near him. We worked through it very slowly and he did just fine. His oxygen was at 91. Awesome. Then at naptime he was crying and scared to go to bed. So I had to hold him, then lay beside him touching him the whole time. Then once he was asleep I could leave the room.
He does not want to change clothes at all and wants to keep his zip up short zipped up all of the way. It is so sad how he is so worried about his chest. It will take time I know but it is just sad to see him have to go through all of this.