Gonzalez's Heart
Things are going much better now. Jaden has been steadily gaining weight again and he is getting back up to his normal feedings. He still has a hard time consistently getting down what he should be and he is having some reflux still. He is as happy as ever and is getting ready to start running. He wants to just get up go. He is always trying to sit up or stand up and if he is not doing that, he is usually kicking his legs. Robyn said she did not think she has seen him with out him kicking his legs all the time.
We are going to the cabin this weekend. It will be nice to have a weekend away. Ashley started school this week and has loved every second of it. She is a little wound up as she is readjusting to the new schedule. Ethan will start pre-school next Tuesday. The school did have a play date for the kids today for an hour to get to know each other. That was really cool. Ethan will be going Monday through Friday until 11:30am. Jaden and I will finally get some really good alone time together. I am really looking forward to that.
Because Jaden had such a bad reaction to his immunizations, I decided to do a lot of research and ask a lot of people how they felt about them. In my research I have found some really disturbing things. There are so many negatives to getting them and so many unknowns. Cancer has been linked to them as well as many things such as Autism, ADD, ADHD to name a few. When a child just receives the shots, others around them are more able to get that particular illness. Many of the shots are live, therefore can be spread more easily. Plus they say if you are already fighting with something that it is sooo hard on your body to add this to it. So I will be doing a lot more research because we feel that we may not give our kids any more immunizations. We are praying about it and will not move forward with it until we know forsure. If anyone has questions and would like to know more, feel free to ask me.
Hope you all enjoy your long weekend. We will post pictures from the weekend.
Love, Steph
Thursday, August 31, 2006
Friday, August 25, 2006
Gonzalez's Heart
Jenny came this morning to weigh Jaden and check his sats again. He was good all around except his weight. He had lost 20 grams since yesturday. With this, his cardiologist wanted to see him in the hospital and be feed with the NG tube. I however did not agree so declined that offer. They said if I was comfortable with him not being monitored all weekend then there was no other option. D.U.M.B. thinking on their part. Jenny will come Monday and at that point see where he is at and then we will recommend to Dr. Martin that he sees a GI specialist or get some GI x-rays. He may simply have developed major reflux or there could be something else wrong. We are not willing to just brush it off and assume we know what the problem is so we will do something further.
The site that Steph T. posted on is trying to "pass a Joint Resolution of Congress to declare February 7-14 as National Congenital Heart Defect Awareness Week!" This will help in many levels and is very important for families like us. Please go to this site and send a letter to our representative. The link listed will walk you through the steps. There is a letter at the bottom of that page that you can copy and paste. Then make sure to obviously personal the blanks. It will only take a few minutes. Thank you for your support. You can periodically send it multiple times and tell others to do the same. http://tchin.org/aware/letter.htm
With much love, Steph
Jenny came this morning to weigh Jaden and check his sats again. He was good all around except his weight. He had lost 20 grams since yesturday. With this, his cardiologist wanted to see him in the hospital and be feed with the NG tube. I however did not agree so declined that offer. They said if I was comfortable with him not being monitored all weekend then there was no other option. D.U.M.B. thinking on their part. Jenny will come Monday and at that point see where he is at and then we will recommend to Dr. Martin that he sees a GI specialist or get some GI x-rays. He may simply have developed major reflux or there could be something else wrong. We are not willing to just brush it off and assume we know what the problem is so we will do something further.
The site that Steph T. posted on is trying to "pass a Joint Resolution of Congress to declare February 7-14 as National Congenital Heart Defect Awareness Week!" This will help in many levels and is very important for families like us. Please go to this site and send a letter to our representative. The link listed will walk you through the steps. There is a letter at the bottom of that page that you can copy and paste. Then make sure to obviously personal the blanks. It will only take a few minutes. Thank you for your support. You can periodically send it multiple times and tell others to do the same. http://tchin.org/aware/letter.htm
With much love, Steph
Wednesday, August 23, 2006
Gonzalez's Heart
So things are a little better today. Jenny his homecare nurse came again and he went from low 70's to high 70's for his oxygen level. He is also doing a little better on his food intake. He still is spitting up quite a bit and he does not normally do this. This does concern me still. Jenny has been authorized from the insurance company to come every day as we monitor his weight and food intake. Hopefully, we will pop out of this little rut he is in and resume back to normal intake.
Thank you for the prayers as we know we need God's hand to get us where we need to be.
Love, Steph
So things are a little better today. Jenny his homecare nurse came again and he went from low 70's to high 70's for his oxygen level. He is also doing a little better on his food intake. He still is spitting up quite a bit and he does not normally do this. This does concern me still. Jenny has been authorized from the insurance company to come every day as we monitor his weight and food intake. Hopefully, we will pop out of this little rut he is in and resume back to normal intake.
Thank you for the prayers as we know we need God's hand to get us where we need to be.
Love, Steph
Tuesday, August 22, 2006
Gonzalez's Heart
So, we need some prayers to come our way. Since Jaden's immunizations last Thursday, he has not been wanting to eat. He is eating on average 12 oz. a day. He should be eating anywhere from 24-32 oz. a day. He starts to eat and then after about an oz. he gets antsy and does not want it anymore. I called his home care nurse Jenny today to have her come over and take a look at him. He looked good all around. His O2 was a little low and his nail beds were a little duskier then normal. But overall, nothing to cause him to not want to eat.
Jenny called our cardiologists nurse to have her talk to Dr. Martin. He said he does not seem to have any cardiac issues so we should contact his pied. (Dr. Hu). We did that and she was not sure what to think about it all. So we are having Dr. Martin and Dr. Hu talk tomorrow to see what the next step should be. Hopefully they will connect and decide what will be best for Jaden before anything gets even worse.
So we need prayer to find why the sudden change in appitite for Jaden and what we can do to fix the problem. His weight is down which is bad but he seems fully hydrated and is having good pee and poo diapers (in our new homemade diapers from Steph Theis's "Pampered Cheeks" business (http://www.pamperedcheeks.com)...
I will let you know of any new news as it comes. Thanks for your prayers.
So, we need some prayers to come our way. Since Jaden's immunizations last Thursday, he has not been wanting to eat. He is eating on average 12 oz. a day. He should be eating anywhere from 24-32 oz. a day. He starts to eat and then after about an oz. he gets antsy and does not want it anymore. I called his home care nurse Jenny today to have her come over and take a look at him. He looked good all around. His O2 was a little low and his nail beds were a little duskier then normal. But overall, nothing to cause him to not want to eat.
Jenny called our cardiologists nurse to have her talk to Dr. Martin. He said he does not seem to have any cardiac issues so we should contact his pied. (Dr. Hu). We did that and she was not sure what to think about it all. So we are having Dr. Martin and Dr. Hu talk tomorrow to see what the next step should be. Hopefully they will connect and decide what will be best for Jaden before anything gets even worse.
So we need prayer to find why the sudden change in appitite for Jaden and what we can do to fix the problem. His weight is down which is bad but he seems fully hydrated and is having good pee and poo diapers (in our new homemade diapers from Steph Theis's "Pampered Cheeks" business (http://www.pamperedcheeks.com)...
I will let you know of any new news as it comes. Thanks for your prayers.
Friday, August 18, 2006
Gonzalez's Heart
Jaden had a busy week. We went to see the cardiologist on Monday. Jaden had an echo, chest x-ray and lab work done. Dr. Martin said he was looking very well and his echo looked very good as well. Jaden was kicking his legs so much that they had a hard time seeing one of his shunts. They were able to see that there seemed to be no leaking so they were fine with the results. They were pleased over all.
He then had his 4 month check with his piediatrician on Thursday. Dr. Hu was very pleased with how alert he is and how well he controls his body movements. She also said he looked wonderful. He had to get his immunizations. Last time he did fine with them. This time though the nurses had to remind him to breath because he was so upset. He was fussing all night last night and has had a slight fever. He was not to pleased getting them I guess.
We will all have to get flu shots this year and he will also get a siniges shot. This is for RSV. They take antibodies from a large group of people and combine it to help bodies adapt better. These are very expensive shots because of the complexity of them.
We have a lite weekend planned. Just staying around the house to catch up on some well needed rest for all.
Love to you all, Steph
Jaden had a busy week. We went to see the cardiologist on Monday. Jaden had an echo, chest x-ray and lab work done. Dr. Martin said he was looking very well and his echo looked very good as well. Jaden was kicking his legs so much that they had a hard time seeing one of his shunts. They were able to see that there seemed to be no leaking so they were fine with the results. They were pleased over all.
He then had his 4 month check with his piediatrician on Thursday. Dr. Hu was very pleased with how alert he is and how well he controls his body movements. She also said he looked wonderful. He had to get his immunizations. Last time he did fine with them. This time though the nurses had to remind him to breath because he was so upset. He was fussing all night last night and has had a slight fever. He was not to pleased getting them I guess.
We will all have to get flu shots this year and he will also get a siniges shot. This is for RSV. They take antibodies from a large group of people and combine it to help bodies adapt better. These are very expensive shots because of the complexity of them.
We have a lite weekend planned. Just staying around the house to catch up on some well needed rest for all.
Love to you all, Steph
Friday, August 11, 2006
Overall Jaden is doing really well. He has been sneezing and coughing for a little while so we will have that checked out at his next appointment. We were supposed to go to the cities this week for his swallow study. But the scheduling people down there messed up so we have to reschedule. This is the appointment which will determine if he is ready to nurse yet or not. I feel he is not going to be ready, but I am praying that my instincts are wrong (which they usually aren't.)
He meets with his Cardiologist next week and we have an echo, chest x-ray and lab work done to see how he is growing.
We will be going down to the cities on Saturday to help dad and Mattie move into their new condo. Kelly will be watching the kids for us while we help.
Hope you all have a great weekend.
Love, Steph
He meets with his Cardiologist next week and we have an echo, chest x-ray and lab work done to see how he is growing.
We will be going down to the cities on Saturday to help dad and Mattie move into their new condo. Kelly will be watching the kids for us while we help.
Hope you all have a great weekend.
Love, Steph
Friday, August 04, 2006
Jaden's Journey
Enjoy these photos of Jaden's first few weeks of life. There are some pictures that may be hard to look at. Click on the picture above to re-direct you to the video.
Tuesday, August 01, 2006
Thank you to everyone for making Jaden's "Celebration of Life" party such a great time. We had just over 100 people stop by to show their support. Also, thank you to all who were not able to make it but kept us all in their thoughts and prayers through out the day.
Of course this was one of the hottest days of the summer but we had a large canopy and a nice breeze so it did not feel so bad. We had 2 different music groups there. We had The Rena Haus band http://www.renahaus.com . They were wonderful and played a great variety of music from blues to folk to country. We also had a quartet called "After Midnight" http://www.myspace.com/aftermidnightquartet . In this quartet was Steve, Jaden's primary nurse whom our family has become very close with. They were absolutely wonderful and put us all in complete relaxation. Thank you to both of these wonderful groups.
As well as having live music, we also had a dunk tank which everyone loved and it was a nice way to cool off in the heat. Plus, Party Time Inflatables also brought a huge octapus bouncer to jump in http://www.partytimeinflatablegames.com.
It was a completely perfect day. Thanks again to all for your support wether in person or in mind. Here are pictures from the party. Hold your cursor over the picture to read the caption.
Jaden is doing wonderful and now weights 11lbs. 2oz. He is truely a "superstar". Yeah for Jaden.
Love to you all, Steph and family
Of course this was one of the hottest days of the summer but we had a large canopy and a nice breeze so it did not feel so bad. We had 2 different music groups there. We had The Rena Haus band http://www.renahaus.com . They were wonderful and played a great variety of music from blues to folk to country. We also had a quartet called "After Midnight" http://www.myspace.com/aftermidnightquartet . In this quartet was Steve, Jaden's primary nurse whom our family has become very close with. They were absolutely wonderful and put us all in complete relaxation. Thank you to both of these wonderful groups.
As well as having live music, we also had a dunk tank which everyone loved and it was a nice way to cool off in the heat. Plus, Party Time Inflatables also brought a huge octapus bouncer to jump in http://www.partytimeinflatablegames.com.
It was a completely perfect day. Thanks again to all for your support wether in person or in mind. Here are pictures from the party. Hold your cursor over the picture to read the caption.
Jaden is doing wonderful and now weights 11lbs. 2oz. He is truely a "superstar". Yeah for Jaden.
Love to you all, Steph and family
Subscribe to:
Posts (Atom)
