Thank you Steph T. for updating for us. We have been SO tired and it has been hard to even turn the computer on.
We just got back a little while ago from our appointment. We were there for about 2 1/2 hours. Dad and Mattie watched Ashley and Ethan and then after the appointment we went back and had dinner with them. The kids will be staying overnight with them tonight and then Kelly will pick them up in the morning and is coming to visit for the weekend. That will be nice.
The appointment went well but the "mystery" is UNSOLVED. Jaden had an echo done and then we met with Dr. Bass. We was very thorough and very pensive. He said the echo looked pretty good. He did not like it completely because he likes things "perfect" he said. Jaden's heart was not functioning as perfectly as he would hope and expect it to after the surgery. However, it was not bad and nothing to be alarmed or overly worried about. He was very concerned though with the symptoms that Jaden is having and the fact that it is 2 1/2 weeks since his surgery and he is just as miserable since the day he had it. He had suggested that we check Jaden into the hospital today. With much hesitation, I asked why. He said, "I think we will need to have the Neurologists check him out and start looking at areas that are less obvious to us." He said not much of anything will happen over the holiday weekend with tests. So I asked him if we could just come back Tuesday. He said that would be fine because he did not believe Jaden to be in any danger that would truly need him to stay in the hospital at this time.
He mentioned that Chip was in the hospital and that he was going to maybe make his way up to see us. I asked Dr. Bass if he could call Chip and tell him we wanted him to come talk to us. So he called Chip and Chip came up with in 10 minutes. Chip did his own evaluation and then the 2 Dr's, Sal, Jaden and I talked for about 15 minutes. It was nice because we were getting 2 Cardiologists for the price of 1 ;-) So together we all came up with it would be safe to take Jaden home and then to come back at 9am Tuesday morning and admit him. We have an appointment to admit him then for Tuesday. Dr. Bass will be talking with the Neurologist Tuesday morning and they will determine our next step. We will for sure be getting an MRI and/or a CT Scan done. We will definitely be doing many things to ensure something simple was not overlooked.
When we were about to leave Dr. Bass said, "you definitely have a lot of people scratchy their heads now." It is so weird how Jaden is having some major complication going on in his body, yet no one can figure it out. All of his tests come out good, yet he is MISERABLE!
This will be very hard on all of us since we thought we would not be back in the hospital for along time. The kids will have a really hard time knowing that Jaden and I will be leaving again. Hopefully this will be a very short stay and someone will have had God hit them over the head with the solution. God is definitely challenging us all here and is making us work to our maximum capacity. Jaden could have a very simple problem, a very major problem or it could just be growing pains and all of the sudden he is fine. Only God knows at this point. I am sure anxious though for the moment when God decides to share it with someone else.
Thank you for the continued prayers. Love to you all and hope you all have a great holiday weekend as we bring in the new year.