Wednesday, September 16, 2009

The time has come for us to move forward with Jaden's surgery. We went to his Cardiologist a few weeks ago. Jaden needed to be 30 pounds which he is a pound or so short of that before they wanted to perform the surgery. He however has had much less energy, he has been more blue, his sats have been sitting in the low 70's which they are supposed to be in the low 80's. He is starting to slowly fail which is the biggest sign that it is time for him to have his surgery. His Cardiologist said it is definitly time. It has been a long wait and we just want to get this over with.

There are a few issues that are not sitting so well with us and we are asking for prayers. The first is for the surgeon and his team. This will be a new surgeon. The other one, Dr. Harrington, performed his first two surgeries. Her thumb prints are on Jadens heart. She moved to CA. The new surgeon has not performed this specific surgery at this hospital. We have not meet with him yet so I am not sure if he has ever done this surgery at all. Either way, he has not done many and he does not know Jadens heart.

The second is his cardiologist, Chip, said at Jaden's apt that his heart muscle, the one which does all of the major work in pumping the blood to the body is not as strong as he would like it to be. Jaden is taking the full amount of medication which helps in strenthening the muscle which he can for his size so we can not at this time do much to help strengthen his muscle. We will see at his heart cath if this will be a problem.

The third is he is not 30 pounds which is what they want to see him at so they are more certain he is strong enough for this surgery. However, being that he is half Gonzalez/half Krueger he is EXTREMELY strong willed & spunky and should be as strong as a 40 or 50 pound child would be ;-)

At this time, his heart cath is scheduled for next Friday the 25th. It should be in and out in the same day. However, if there are any complications then he would have to stay. His surgery will hopefully then be sometime in the first week of October. We do not have the date for this yet. I am not sure if we have to wait for his heart cath before we can schedule it. I will start updating much more often now as many of you have already been wondering and waiting for information. Your support on this blog has always been my biggest support. It helps me through each day and it helps me feel connected to those I love. So thank you in advance again for all of your endless support.

Love, Steph


Kristin said...

I noticed last time I saw you that his lips were looking a bit blue again. :( (Tho not as bad as before his first surgery!) I'll be checking for updates, and praying regularly.

Steph and Mitch T said...

Thinking of you...

gb said...

Thoughts and prayers. He will be running around the camper again in no time! G