So, we need some prayers to come our way. Since Jaden's immunizations last Thursday, he has not been wanting to eat. He is eating on average 12 oz. a day. He should be eating anywhere from 24-32 oz. a day. He starts to eat and then after about an oz. he gets antsy and does not want it anymore. I called his home care nurse Jenny today to have her come over and take a look at him. He looked good all around. His O2 was a little low and his nail beds were a little duskier then normal. But overall, nothing to cause him to not want to eat.
Jenny called our cardiologists nurse to have her talk to Dr. Martin. He said he does not seem to have any cardiac issues so we should contact his pied. (Dr. Hu). We did that and she was not sure what to think about it all. So we are having Dr. Martin and Dr. Hu talk tomorrow to see what the next step should be. Hopefully they will connect and decide what will be best for Jaden before anything gets even worse.
So we need prayer to find why the sudden change in appitite for Jaden and what we can do to fix the problem. His weight is down which is bad but he seems fully hydrated and is having good pee and poo diapers (in our new homemade diapers from Steph Theis's "Pampered Cheeks" business (http://www.pamperedcheeks.com)...
I will let you know of any new news as it comes. Thanks for your prayers.