Wednesday, August 23, 2006

Gonzalez's Heart

So things are a little better today. Jenny his homecare nurse came again and he went from low 70's to high 70's for his oxygen level. He is also doing a little better on his food intake. He still is spitting up quite a bit and he does not normally do this. This does concern me still. Jenny has been authorized from the insurance company to come every day as we monitor his weight and food intake. Hopefully, we will pop out of this little rut he is in and resume back to normal intake.

Thank you for the prayers as we know we need God's hand to get us where we need to be.

Love, Steph

3 comments:

Steph and Mitch T said...

We're still praying for you. Jaden looked so good tonight when I stopped by. It was fun to see him jabbering and playing. If he's supposed to get more energy after the second surgery, I don't know how you are going to handle him--he's going to be all over the place!!! =)

Hugs,
Steph T

Steph and Mitch T said...

Hey there! I've had fun crawling the web again for you. =) There is this one site that I come back to again and again. I really like it:
Congenital Heart Information Network (tchin.org)

I went there and down the left-hand side clicked "search." I typed in the search bar: hlhs, reflux. It pulled up TONS of stories of babies who are spitting up! It seemed that most of them improved with meds. Remember, my Caleb was so bad that he was spitting up carrots--and the doctors refused to test him, but when my doc finally listened and put him on zantac, he got completely better. None of my other kids spit up that much or needed help.

If you do go there and read stories, try not to get too wrapped up in it--remember that Jaden is a superstar and we are all praying for him! He is going to do just fine even through this bump in the road. Getting him to where he feels good and gaining weight is the goal. You know that he will do it his own way, cause that's just how he is! ;-)

Love ya,
Steph

Steph and Mitch T said...

Ok, so just so you know, a lot of sites that I've been reading on say that spit up peaks at 4 months old and continues to 8 months. They also mention the relation between teething (swallowing the excess saliva, etc), and starting solids (keeping an eye out for allergies). Crying after he spits up would indicate pain and discomfort. GERD (reflux) doesn't always have spit-up, in other words your baby could have reflux and not spit up, nor does spitting up always indicate reflux (which is why the docs wouldn't test Caleb). Weight gain is the number one concern and indicator of a more serious problem. But I think that pain/discomfort should be also! And in reading some of the descriptions of the consistency of the spit up, (yuck, lol) Jaden's falls right into the category of "normal." Spit up that is green or bloody or...well, I guess I won't go there. So it might be yellowish, chunky, or gloopy, but it sounds like that's ok. Gross, I know. =) Just wanted to share with everyone out there!!

Steph T