Gonzalez's Heart
Things have been very busy around here. We are preparing for Jaden's surgery figuring out schedules and when Sal and the kids will come down. We are also trying to stay healthy which has taken a downward spin in the past 2 days. Jaden had been having a runny nose since Sunday and then last night was up coughing all night and had a lot of stuff coming out of his nose. Today he has been fine but we all know that night is the hardest when being sick. We need a ton of prayers coming at him to be done with this by next week. Ashley was also coughing last night and this morning. She of course is always kissing Jaden and holding him. So they probably got sick from each other which at least is a cute way to get sick.
As some of you know, Sal and I are opening up a small ma and pa mechanic shop. We are very excited but have all of the preparation and planning for that going on at the same time as preparing for surgery. So needless to say it has been stressful. We actually get the keys today and will be going there in a few minutes. We have our first customer coming in first thing in the morning (The Theis's). We are not completely ready for business to start coming in but have planned on the Theis's so we have what we need for that.
We are so excited for this new addition to our business. I am sorry, we at this time are not doing oil changes. Many of you have been begging for it but have not decided to add that on to our shop at this time. We have spent many hours brainstorming about names and trying to decide what would be the best one for us. Our FedEx business name is Frontgate, so with some help from many others, Steph had come up with taking the F and G from Frontgate and came up with Fifth Gear. (Sorry Wally). So we are Fifth Gear Repair Inc.
Thank you all for your support with our family. We love you all!
The Gonzalez's
Tuesday, October 31, 2006
Friday, October 20, 2006
Gonzalez's Heart
So the anticipated date has finally been scheduled. Jaden will have an echo, kath and physical Nov. 6 & 7th. His surgery is scheduled for Nov. 9th at 7am. We will have to be there at 5am. When I received the date over the phone, I was so nervous. After hanging up, I broke down and cried. It was like reality hit that Jaden had to go through heart surgery again. But it also means we are one more step closer to him being done with his 3 surgeries.
We need some major prayers going now. We need to pray that Jaden remains very healthy from now until the surgery. He needs to continue to gain weight in these next 3 weeks and get much stronger so his surgery goes perfectly. We also need to start praying for the sharp knowledge, skill, safety and well being of the surgeon (Dr. Harrington) and her team. If Dr. Harrington is not feeling 100% the day of the surgery, her focus may not be as good. So if you could all start praying for these things that would be so wonderful.
We will continue to keep you posted with Jaden's health and any prayer requests we need. Thank you all again for your continued support and prayers. We know it is by the grace of God that Jaden is here with us today and we continue to thank him daily for our wonderful family.
Much love to you all, Steph
So the anticipated date has finally been scheduled. Jaden will have an echo, kath and physical Nov. 6 & 7th. His surgery is scheduled for Nov. 9th at 7am. We will have to be there at 5am. When I received the date over the phone, I was so nervous. After hanging up, I broke down and cried. It was like reality hit that Jaden had to go through heart surgery again. But it also means we are one more step closer to him being done with his 3 surgeries.
We need some major prayers going now. We need to pray that Jaden remains very healthy from now until the surgery. He needs to continue to gain weight in these next 3 weeks and get much stronger so his surgery goes perfectly. We also need to start praying for the sharp knowledge, skill, safety and well being of the surgeon (Dr. Harrington) and her team. If Dr. Harrington is not feeling 100% the day of the surgery, her focus may not be as good. So if you could all start praying for these things that would be so wonderful.
We will continue to keep you posted with Jaden's health and any prayer requests we need. Thank you all again for your continued support and prayers. We know it is by the grace of God that Jaden is here with us today and we continue to thank him daily for our wonderful family.
Much love to you all, Steph
Tuesday, October 17, 2006
Friday, October 13, 2006
Gonzalez's Heart
So we had another appointment with Chip yesterday. Chip thinks Jaden looks good and will be fine waiting for this next surgery. We still do not have a date a month later, however, it will now not be until November sometime. I will be personally calling to the U of M on Monday to set a few people straight.
I am not going to go into to much detail of our appointment and my confronting Chip of his practice other then I will say he was more unprofessional then any other person or situation I have experienced. Being in the military for 8 years, living in California and having multiple jobs, I have encountered a lot. He basically bad mouthed and cut throat everyone involved to include basically telling me I need to get a new pied. Dr.
Everyone was to blame but himself and he not only talked defensively for 45 min. at about 60 mph but he swore multiple times (not at me) but in his general outbreak. It was so intense in there that you could have started fireworks. Wendy (Sal's sister) went with me and she could not believe the kind of manner he conducted himself. He has some major issues he needs to deal with. He would not listen to me and at one point we were both talking at the same time. I was very calm, professional and said it as it is. I told him that I know many of his patients and they all feel the same and I am speaking for them all. I told him I wanted to communicate this to him so he did not lose his practice and so he could try to change his way of running his clinic. However, he was not interested in a thing I had to say. Wendy thought I was way to nice to him but said even if I had been more aggressive it would not have made a difference.
After this next surgery, I am going to move forward and take some extreme actions against him which is very unfortunate.
So when I have a date, I will let you know. Until then like Kelly posted, we need to keep our energy in a positive manner so we can get through this with another A+. So please keep the prayers coming for a calm heart for us all. We also need to pray for Jaden and our family to stay healthy so that when surgery is scheduled that we do not have to push it back due to illness.
Much love to you all, Steph
So we had another appointment with Chip yesterday. Chip thinks Jaden looks good and will be fine waiting for this next surgery. We still do not have a date a month later, however, it will now not be until November sometime. I will be personally calling to the U of M on Monday to set a few people straight.
I am not going to go into to much detail of our appointment and my confronting Chip of his practice other then I will say he was more unprofessional then any other person or situation I have experienced. Being in the military for 8 years, living in California and having multiple jobs, I have encountered a lot. He basically bad mouthed and cut throat everyone involved to include basically telling me I need to get a new pied. Dr.
Everyone was to blame but himself and he not only talked defensively for 45 min. at about 60 mph but he swore multiple times (not at me) but in his general outbreak. It was so intense in there that you could have started fireworks. Wendy (Sal's sister) went with me and she could not believe the kind of manner he conducted himself. He has some major issues he needs to deal with. He would not listen to me and at one point we were both talking at the same time. I was very calm, professional and said it as it is. I told him that I know many of his patients and they all feel the same and I am speaking for them all. I told him I wanted to communicate this to him so he did not lose his practice and so he could try to change his way of running his clinic. However, he was not interested in a thing I had to say. Wendy thought I was way to nice to him but said even if I had been more aggressive it would not have made a difference.
After this next surgery, I am going to move forward and take some extreme actions against him which is very unfortunate.
So when I have a date, I will let you know. Until then like Kelly posted, we need to keep our energy in a positive manner so we can get through this with another A+. So please keep the prayers coming for a calm heart for us all. We also need to pray for Jaden and our family to stay healthy so that when surgery is scheduled that we do not have to push it back due to illness.
Much love to you all, Steph
Monday, October 09, 2006
Gonzalez's Heart
It has been almost 3 weeks since our appointment with Chip the cardiologist and no word on the surgery. I had our home care nurse Jenny figure out what is going on and she got a hold of the scheduling person at the U of M for the surgery and found out that Chip never turned in the orders. The lady said this has happened with him before. We have had many, many issues with Chip but have not said to much to all of you. This was the last line and I am going to file an official complaint. He has stepped way over the line on this one. We will work on getting a date set tomorrow (Jenny and I). Hopefully we can get something accomplished.
Jaden is doing well and luckily has not gotten sick yet but Ethan has. We are sanitizing our hands 24/7 to try and help to not spread anything. If Jaden gets sick and the surgery has to be post-poned, I will put all the blame on Chip. Pray for a healthy family and for the surgery to be scheduled so we can move on.
Love and thanks to you all for the continued support.
Steph
It has been almost 3 weeks since our appointment with Chip the cardiologist and no word on the surgery. I had our home care nurse Jenny figure out what is going on and she got a hold of the scheduling person at the U of M for the surgery and found out that Chip never turned in the orders. The lady said this has happened with him before. We have had many, many issues with Chip but have not said to much to all of you. This was the last line and I am going to file an official complaint. He has stepped way over the line on this one. We will work on getting a date set tomorrow (Jenny and I). Hopefully we can get something accomplished.
Jaden is doing well and luckily has not gotten sick yet but Ethan has. We are sanitizing our hands 24/7 to try and help to not spread anything. If Jaden gets sick and the surgery has to be post-poned, I will put all the blame on Chip. Pray for a healthy family and for the surgery to be scheduled so we can move on.
Love and thanks to you all for the continued support.
Steph
Monday, October 02, 2006
Gonzalez's Heart
We are still (not so patiently) waiting to hear when the surgery is going to be. We have heard nothing and even called the cardiologist to see if they have heard, which they have not. Jaden is still spitting up a lot and his pied. wants me to take him in so they can see what is going on since it is such a large amount.
We had a great weekend at the cabin. The weather was perfect and we spent the entire weekend outside. We raked, cut wood, went on walks, had a bon fire and added Jaden's name plaque to the family trail of names down the driveway. We even did our dogs name to the trail. It was a lot of fun. Enjoy the slide show below of our weekend and we will keep you posted.
Love to you all, Steph
We are still (not so patiently) waiting to hear when the surgery is going to be. We have heard nothing and even called the cardiologist to see if they have heard, which they have not. Jaden is still spitting up a lot and his pied. wants me to take him in so they can see what is going on since it is such a large amount.
We had a great weekend at the cabin. The weather was perfect and we spent the entire weekend outside. We raked, cut wood, went on walks, had a bon fire and added Jaden's name plaque to the family trail of names down the driveway. We even did our dogs name to the trail. It was a lot of fun. Enjoy the slide show below of our weekend and we will keep you posted.
Love to you all, Steph
Tuesday, September 26, 2006
Gonzalez's Heart
Jaden had his cardiology appointment last Wednesday. The appointment took a little over 3 hours. Luckily Steph T. was taking care of Ethan and Adina picked Ashley up from school. His echo looked really good and his chest xrays came out good as well. His lab work had no signs of any problems in it and Jaden over all looked really good to Chip. His sats have been in the low 70's for a few weeks now so that seems to be where his "now" normal is at.
Chip said he would like to have the surgery in October. He put in a request for the first week since he will be at the U of M that week. I have not yet heard from scheduling so do not know when it will be. It will come up in a blink of the eye. I am trying to find a nanny or someone who can help with the kids pretty much full time while I am gone and for a little while when I get back as we have to be very, very careful with how we handle Jaden for 6 weeks after the surgery. This is going to be hard but dad and Mattie have already looked into some options and we have found a few possibles.
Please keep us all in your prayers as we prepare for this next step. It has already been difficult just thinking about it. The surgery is supposed to be a lot easier this time around but we are also a lot more attached to Jaden. They say on average the babies get out of the hospital 10-14 days after this surgery. We will see how quick Jaden wants to run out of there. We will pray for no complications and a quick recovery so we can get out of there fast. We will stay at the Ronald McDonald house again. And of course visitors are welcome. For those of you who have just started reading the blog, you can go into the archives on the right of the screen and there are many different sites that I and/or others have posted which gives out great info on Hypo-Plastic Left Heart Syndrome. There are also many pictures, slide shows and a montage that you can look at.
Above is a slide show of "Pampered Cheeks" first photo shoot. This is Steph T.'s new business and all of the babies are babies that are sporting her awesome diapers or whose mom's have been taught by Steph how to make them. It was a lot of fun and Angela who took the pictures on the slide of our family pictures took the cute pampered babies butts pictures. Hope you enjoy these fun pictures.
We will let you know as soon as we know when the next surgery is scheduled.
Love, Steph
Jaden had his cardiology appointment last Wednesday. The appointment took a little over 3 hours. Luckily Steph T. was taking care of Ethan and Adina picked Ashley up from school. His echo looked really good and his chest xrays came out good as well. His lab work had no signs of any problems in it and Jaden over all looked really good to Chip. His sats have been in the low 70's for a few weeks now so that seems to be where his "now" normal is at.
Chip said he would like to have the surgery in October. He put in a request for the first week since he will be at the U of M that week. I have not yet heard from scheduling so do not know when it will be. It will come up in a blink of the eye. I am trying to find a nanny or someone who can help with the kids pretty much full time while I am gone and for a little while when I get back as we have to be very, very careful with how we handle Jaden for 6 weeks after the surgery. This is going to be hard but dad and Mattie have already looked into some options and we have found a few possibles.
Please keep us all in your prayers as we prepare for this next step. It has already been difficult just thinking about it. The surgery is supposed to be a lot easier this time around but we are also a lot more attached to Jaden. They say on average the babies get out of the hospital 10-14 days after this surgery. We will see how quick Jaden wants to run out of there. We will pray for no complications and a quick recovery so we can get out of there fast. We will stay at the Ronald McDonald house again. And of course visitors are welcome. For those of you who have just started reading the blog, you can go into the archives on the right of the screen and there are many different sites that I and/or others have posted which gives out great info on Hypo-Plastic Left Heart Syndrome. There are also many pictures, slide shows and a montage that you can look at.
Above is a slide show of "Pampered Cheeks" first photo shoot. This is Steph T.'s new business and all of the babies are babies that are sporting her awesome diapers or whose mom's have been taught by Steph how to make them. It was a lot of fun and Angela who took the pictures on the slide of our family pictures took the cute pampered babies butts pictures. Hope you enjoy these fun pictures.
We will let you know as soon as we know when the next surgery is scheduled.
Love, Steph
Tuesday, September 19, 2006
Gonzalez's Heart
This past week has been pretty rough. Jaden has been very very crabby and is spitting up a ton. When Jenny (homecare nurse) came on Thursday and weighed him, he had only gained one once in two weeks. That is 13 ounces to little. His sats were a little low and she was concerned at how uncomfortable he was with his spitting up. We got in to the Dr. on Friday and got bumped up two weeks to see his Cardiologist tomorrow. Friday the Dr. actually talked to Chip on the phone and the two of them decided to wait on any tests until we see Chip tomorrow. They did put him on Zantac and doubled his Reglan to help with all his stomach stuff. I will let you know tomorrow what Chip says and how the appointment goes.
We do need a lot of prayers for Jaden and for our family. It has been very stressful on Sal and I. In return the kids have been a little off the wall. We are all tired as the stress drains us so much. The Dr.'s keep telling us that it is the other Dr.'s area of concern so we are not getting any kind of answers. If it were not for Jenny and her help, I am not sure what we would do. We just need one of the Dr.'s to step up and say, I will take care of it and help to figure out what is going on. We have none of that.
Jaden is crying so I better be off. Love to you all.. Steph
This past week has been pretty rough. Jaden has been very very crabby and is spitting up a ton. When Jenny (homecare nurse) came on Thursday and weighed him, he had only gained one once in two weeks. That is 13 ounces to little. His sats were a little low and she was concerned at how uncomfortable he was with his spitting up. We got in to the Dr. on Friday and got bumped up two weeks to see his Cardiologist tomorrow. Friday the Dr. actually talked to Chip on the phone and the two of them decided to wait on any tests until we see Chip tomorrow. They did put him on Zantac and doubled his Reglan to help with all his stomach stuff. I will let you know tomorrow what Chip says and how the appointment goes.
We do need a lot of prayers for Jaden and for our family. It has been very stressful on Sal and I. In return the kids have been a little off the wall. We are all tired as the stress drains us so much. The Dr.'s keep telling us that it is the other Dr.'s area of concern so we are not getting any kind of answers. If it were not for Jenny and her help, I am not sure what we would do. We just need one of the Dr.'s to step up and say, I will take care of it and help to figure out what is going on. We have none of that.
Jaden is crying so I better be off. Love to you all.. Steph
Wednesday, September 13, 2006
Gonzalez's Heart
OK, so naturally when all aspiring actors give a show it is normal to get a little stage freight and they forget their lines. Well Jaden got a little phone fright and he got the hiccups. So the breaks you hear is not the phone cutting out but his hiccups. You even get a squeal out of him. Enjoy the noises of little Jaden.
OK, so naturally when all aspiring actors give a show it is normal to get a little stage freight and they forget their lines. Well Jaden got a little phone fright and he got the hiccups. So the breaks you hear is not the phone cutting out but his hiccups. You even get a squeal out of him. Enjoy the noises of little Jaden.
Sunday, September 10, 2006
Gonzalez's Heart
I know many of you have been waiting to hear the news from the swallow study. I am sorry it took so long for me to update, but we have been very busy setteling into our new schedule.
We woke up a little earlier on Wednesday to get to Jaden's swallow study appointment on time. We dropped Ashley off at Adina's house so Ash could still go to school. Adina also picked her up and then brought Ashley to her gymnastics class. We then dropped Ethan off with Tammy in Maple Grove. We then went to the appointment. Jim, who worked with us while in the hospital remebered us very well and conducted the appointment.
Jaden had not eaten since 6am and by the time they started it was almost 11am. Jim was very impressed at how happy and content Jaden was especially not having eaten for so long. He also commented on how GREAT Jaden looked. So they started the test using thick Barium as if it was his thickened milk. After seeing him do well with that, they then tested Barium at a thin state with 3 different nipples. They used a slow flow cross tip and circle and a fast flow. He also tested him with a consistency of rice cereal and a spoon. He did wonderful. Jim said he knew exactly what to do with his tounge and swallowing and was very pleased at how well he could coordinate this all.
The end result......... (drum roll please). He did not aspirate. YEAH!!!!! We were all so proud of him. So this means that I can start nursing him. However, we need to wait and test Jaden with a slow flow nipple first for a week to make sure he can handle it and then to make sure he does not start to show any signs of aspiration. After a week of trying with the bottle, we then will transition into nursing. We will have to still bottle feed every couple feeding to keep up the higher calorie intake. We were going to start right away but were waiting on hearing back from Chip "the cardiologist." Of course I told Jim he was probably in Jamaca or something and good luck getting hold of him. We still have not heard back from him (no surprise on this end), so I am just going to start tomorrow.
It will be hard though to nurse because my supply has gone so low. I have started drinking "nursing mothers" tea and taking natural supplements that is supposed to help increase my flow. It seems to have helped a little but Jaden may not get what he needs so may get frustrated. It will probably take a lot of work and calculation to make sure to not pump too close to when he needs to eat. I will have to get him on a tight schedule as well as myself to make sure it works.
So all great news here!!! Hope you are all doing well and again thank you for all of your prayers. God has heard. We need prayers now for Jaden and myself to get where we need to be so he can nurse. It has been 5 long months of pumping and I am so ready to be able to hold my baby and feed him the way God intended.
Love, Steph
I know many of you have been waiting to hear the news from the swallow study. I am sorry it took so long for me to update, but we have been very busy setteling into our new schedule.
We woke up a little earlier on Wednesday to get to Jaden's swallow study appointment on time. We dropped Ashley off at Adina's house so Ash could still go to school. Adina also picked her up and then brought Ashley to her gymnastics class. We then dropped Ethan off with Tammy in Maple Grove. We then went to the appointment. Jim, who worked with us while in the hospital remebered us very well and conducted the appointment.
Jaden had not eaten since 6am and by the time they started it was almost 11am. Jim was very impressed at how happy and content Jaden was especially not having eaten for so long. He also commented on how GREAT Jaden looked. So they started the test using thick Barium as if it was his thickened milk. After seeing him do well with that, they then tested Barium at a thin state with 3 different nipples. They used a slow flow cross tip and circle and a fast flow. He also tested him with a consistency of rice cereal and a spoon. He did wonderful. Jim said he knew exactly what to do with his tounge and swallowing and was very pleased at how well he could coordinate this all.
The end result......... (drum roll please). He did not aspirate. YEAH!!!!! We were all so proud of him. So this means that I can start nursing him. However, we need to wait and test Jaden with a slow flow nipple first for a week to make sure he can handle it and then to make sure he does not start to show any signs of aspiration. After a week of trying with the bottle, we then will transition into nursing. We will have to still bottle feed every couple feeding to keep up the higher calorie intake. We were going to start right away but were waiting on hearing back from Chip "the cardiologist." Of course I told Jim he was probably in Jamaca or something and good luck getting hold of him. We still have not heard back from him (no surprise on this end), so I am just going to start tomorrow.
It will be hard though to nurse because my supply has gone so low. I have started drinking "nursing mothers" tea and taking natural supplements that is supposed to help increase my flow. It seems to have helped a little but Jaden may not get what he needs so may get frustrated. It will probably take a lot of work and calculation to make sure to not pump too close to when he needs to eat. I will have to get him on a tight schedule as well as myself to make sure it works.
So all great news here!!! Hope you are all doing well and again thank you for all of your prayers. God has heard. We need prayers now for Jaden and myself to get where we need to be so he can nurse. It has been 5 long months of pumping and I am so ready to be able to hold my baby and feed him the way God intended.
Love, Steph
Tuesday, September 05, 2006
Gonzalez's Heart
Jaden has been doing well this past week. He is still not eating as much as he had been prior to his immunizations, but he has at least increased his intake to more comfortable amount for us to see.
We had a good time at the cabin but by the end of our stay, Jaden was definitly ready to be home. It was perfect weather and we hung out, went on a walk, played games and had a great big firework display. That was pretty fun.
We are going to Jaden's swallow study tomorrow at the U of M. Please keep us in your prayers as we are hoping that he is not aspirating anymore. I think he is but a miracle could happen overnight. We will ley you know how it goes.
Thank you all for your continued support. We are still looking into immunization information. So yes Robin P. I would love to talk with you and see the information you have already collected.
Love, Steph
Jaden has been doing well this past week. He is still not eating as much as he had been prior to his immunizations, but he has at least increased his intake to more comfortable amount for us to see.
We had a good time at the cabin but by the end of our stay, Jaden was definitly ready to be home. It was perfect weather and we hung out, went on a walk, played games and had a great big firework display. That was pretty fun.
We are going to Jaden's swallow study tomorrow at the U of M. Please keep us in your prayers as we are hoping that he is not aspirating anymore. I think he is but a miracle could happen overnight. We will ley you know how it goes.
Thank you all for your continued support. We are still looking into immunization information. So yes Robin P. I would love to talk with you and see the information you have already collected.
Love, Steph
Thursday, August 31, 2006
Gonzalez's Heart
Things are going much better now. Jaden has been steadily gaining weight again and he is getting back up to his normal feedings. He still has a hard time consistently getting down what he should be and he is having some reflux still. He is as happy as ever and is getting ready to start running. He wants to just get up go. He is always trying to sit up or stand up and if he is not doing that, he is usually kicking his legs. Robyn said she did not think she has seen him with out him kicking his legs all the time.
We are going to the cabin this weekend. It will be nice to have a weekend away. Ashley started school this week and has loved every second of it. She is a little wound up as she is readjusting to the new schedule. Ethan will start pre-school next Tuesday. The school did have a play date for the kids today for an hour to get to know each other. That was really cool. Ethan will be going Monday through Friday until 11:30am. Jaden and I will finally get some really good alone time together. I am really looking forward to that.
Because Jaden had such a bad reaction to his immunizations, I decided to do a lot of research and ask a lot of people how they felt about them. In my research I have found some really disturbing things. There are so many negatives to getting them and so many unknowns. Cancer has been linked to them as well as many things such as Autism, ADD, ADHD to name a few. When a child just receives the shots, others around them are more able to get that particular illness. Many of the shots are live, therefore can be spread more easily. Plus they say if you are already fighting with something that it is sooo hard on your body to add this to it. So I will be doing a lot more research because we feel that we may not give our kids any more immunizations. We are praying about it and will not move forward with it until we know forsure. If anyone has questions and would like to know more, feel free to ask me.
Hope you all enjoy your long weekend. We will post pictures from the weekend.
Love, Steph
Things are going much better now. Jaden has been steadily gaining weight again and he is getting back up to his normal feedings. He still has a hard time consistently getting down what he should be and he is having some reflux still. He is as happy as ever and is getting ready to start running. He wants to just get up go. He is always trying to sit up or stand up and if he is not doing that, he is usually kicking his legs. Robyn said she did not think she has seen him with out him kicking his legs all the time.
We are going to the cabin this weekend. It will be nice to have a weekend away. Ashley started school this week and has loved every second of it. She is a little wound up as she is readjusting to the new schedule. Ethan will start pre-school next Tuesday. The school did have a play date for the kids today for an hour to get to know each other. That was really cool. Ethan will be going Monday through Friday until 11:30am. Jaden and I will finally get some really good alone time together. I am really looking forward to that.
Because Jaden had such a bad reaction to his immunizations, I decided to do a lot of research and ask a lot of people how they felt about them. In my research I have found some really disturbing things. There are so many negatives to getting them and so many unknowns. Cancer has been linked to them as well as many things such as Autism, ADD, ADHD to name a few. When a child just receives the shots, others around them are more able to get that particular illness. Many of the shots are live, therefore can be spread more easily. Plus they say if you are already fighting with something that it is sooo hard on your body to add this to it. So I will be doing a lot more research because we feel that we may not give our kids any more immunizations. We are praying about it and will not move forward with it until we know forsure. If anyone has questions and would like to know more, feel free to ask me.
Hope you all enjoy your long weekend. We will post pictures from the weekend.
Love, Steph
Friday, August 25, 2006
Gonzalez's Heart
Jenny came this morning to weigh Jaden and check his sats again. He was good all around except his weight. He had lost 20 grams since yesturday. With this, his cardiologist wanted to see him in the hospital and be feed with the NG tube. I however did not agree so declined that offer. They said if I was comfortable with him not being monitored all weekend then there was no other option. D.U.M.B. thinking on their part. Jenny will come Monday and at that point see where he is at and then we will recommend to Dr. Martin that he sees a GI specialist or get some GI x-rays. He may simply have developed major reflux or there could be something else wrong. We are not willing to just brush it off and assume we know what the problem is so we will do something further.
The site that Steph T. posted on is trying to "pass a Joint Resolution of Congress to declare February 7-14 as National Congenital Heart Defect Awareness Week!" This will help in many levels and is very important for families like us. Please go to this site and send a letter to our representative. The link listed will walk you through the steps. There is a letter at the bottom of that page that you can copy and paste. Then make sure to obviously personal the blanks. It will only take a few minutes. Thank you for your support. You can periodically send it multiple times and tell others to do the same. http://tchin.org/aware/letter.htm
With much love, Steph
Jenny came this morning to weigh Jaden and check his sats again. He was good all around except his weight. He had lost 20 grams since yesturday. With this, his cardiologist wanted to see him in the hospital and be feed with the NG tube. I however did not agree so declined that offer. They said if I was comfortable with him not being monitored all weekend then there was no other option. D.U.M.B. thinking on their part. Jenny will come Monday and at that point see where he is at and then we will recommend to Dr. Martin that he sees a GI specialist or get some GI x-rays. He may simply have developed major reflux or there could be something else wrong. We are not willing to just brush it off and assume we know what the problem is so we will do something further.
The site that Steph T. posted on is trying to "pass a Joint Resolution of Congress to declare February 7-14 as National Congenital Heart Defect Awareness Week!" This will help in many levels and is very important for families like us. Please go to this site and send a letter to our representative. The link listed will walk you through the steps. There is a letter at the bottom of that page that you can copy and paste. Then make sure to obviously personal the blanks. It will only take a few minutes. Thank you for your support. You can periodically send it multiple times and tell others to do the same. http://tchin.org/aware/letter.htm
With much love, Steph
Wednesday, August 23, 2006
Gonzalez's Heart
So things are a little better today. Jenny his homecare nurse came again and he went from low 70's to high 70's for his oxygen level. He is also doing a little better on his food intake. He still is spitting up quite a bit and he does not normally do this. This does concern me still. Jenny has been authorized from the insurance company to come every day as we monitor his weight and food intake. Hopefully, we will pop out of this little rut he is in and resume back to normal intake.
Thank you for the prayers as we know we need God's hand to get us where we need to be.
Love, Steph
So things are a little better today. Jenny his homecare nurse came again and he went from low 70's to high 70's for his oxygen level. He is also doing a little better on his food intake. He still is spitting up quite a bit and he does not normally do this. This does concern me still. Jenny has been authorized from the insurance company to come every day as we monitor his weight and food intake. Hopefully, we will pop out of this little rut he is in and resume back to normal intake.
Thank you for the prayers as we know we need God's hand to get us where we need to be.
Love, Steph
Tuesday, August 22, 2006
Gonzalez's Heart
So, we need some prayers to come our way. Since Jaden's immunizations last Thursday, he has not been wanting to eat. He is eating on average 12 oz. a day. He should be eating anywhere from 24-32 oz. a day. He starts to eat and then after about an oz. he gets antsy and does not want it anymore. I called his home care nurse Jenny today to have her come over and take a look at him. He looked good all around. His O2 was a little low and his nail beds were a little duskier then normal. But overall, nothing to cause him to not want to eat.
Jenny called our cardiologists nurse to have her talk to Dr. Martin. He said he does not seem to have any cardiac issues so we should contact his pied. (Dr. Hu). We did that and she was not sure what to think about it all. So we are having Dr. Martin and Dr. Hu talk tomorrow to see what the next step should be. Hopefully they will connect and decide what will be best for Jaden before anything gets even worse.
So we need prayer to find why the sudden change in appitite for Jaden and what we can do to fix the problem. His weight is down which is bad but he seems fully hydrated and is having good pee and poo diapers (in our new homemade diapers from Steph Theis's "Pampered Cheeks" business (http://www.pamperedcheeks.com)...
I will let you know of any new news as it comes. Thanks for your prayers.
So, we need some prayers to come our way. Since Jaden's immunizations last Thursday, he has not been wanting to eat. He is eating on average 12 oz. a day. He should be eating anywhere from 24-32 oz. a day. He starts to eat and then after about an oz. he gets antsy and does not want it anymore. I called his home care nurse Jenny today to have her come over and take a look at him. He looked good all around. His O2 was a little low and his nail beds were a little duskier then normal. But overall, nothing to cause him to not want to eat.
Jenny called our cardiologists nurse to have her talk to Dr. Martin. He said he does not seem to have any cardiac issues so we should contact his pied. (Dr. Hu). We did that and she was not sure what to think about it all. So we are having Dr. Martin and Dr. Hu talk tomorrow to see what the next step should be. Hopefully they will connect and decide what will be best for Jaden before anything gets even worse.
So we need prayer to find why the sudden change in appitite for Jaden and what we can do to fix the problem. His weight is down which is bad but he seems fully hydrated and is having good pee and poo diapers (in our new homemade diapers from Steph Theis's "Pampered Cheeks" business (http://www.pamperedcheeks.com)...
I will let you know of any new news as it comes. Thanks for your prayers.
Friday, August 18, 2006
Gonzalez's Heart
Jaden had a busy week. We went to see the cardiologist on Monday. Jaden had an echo, chest x-ray and lab work done. Dr. Martin said he was looking very well and his echo looked very good as well. Jaden was kicking his legs so much that they had a hard time seeing one of his shunts. They were able to see that there seemed to be no leaking so they were fine with the results. They were pleased over all.
He then had his 4 month check with his piediatrician on Thursday. Dr. Hu was very pleased with how alert he is and how well he controls his body movements. She also said he looked wonderful. He had to get his immunizations. Last time he did fine with them. This time though the nurses had to remind him to breath because he was so upset. He was fussing all night last night and has had a slight fever. He was not to pleased getting them I guess.
We will all have to get flu shots this year and he will also get a siniges shot. This is for RSV. They take antibodies from a large group of people and combine it to help bodies adapt better. These are very expensive shots because of the complexity of them.
We have a lite weekend planned. Just staying around the house to catch up on some well needed rest for all.
Love to you all, Steph
Jaden had a busy week. We went to see the cardiologist on Monday. Jaden had an echo, chest x-ray and lab work done. Dr. Martin said he was looking very well and his echo looked very good as well. Jaden was kicking his legs so much that they had a hard time seeing one of his shunts. They were able to see that there seemed to be no leaking so they were fine with the results. They were pleased over all.
He then had his 4 month check with his piediatrician on Thursday. Dr. Hu was very pleased with how alert he is and how well he controls his body movements. She also said he looked wonderful. He had to get his immunizations. Last time he did fine with them. This time though the nurses had to remind him to breath because he was so upset. He was fussing all night last night and has had a slight fever. He was not to pleased getting them I guess.
We will all have to get flu shots this year and he will also get a siniges shot. This is for RSV. They take antibodies from a large group of people and combine it to help bodies adapt better. These are very expensive shots because of the complexity of them.
We have a lite weekend planned. Just staying around the house to catch up on some well needed rest for all.
Love to you all, Steph
Subscribe to:
Posts (Atom)
