Saturday, April 29, 2006

Gonzalez's Heart

Scroll down and listen to first audio posts then these.
this is an audio post - click to play
this is an audio post - click to play
Gonzalez's Heart

Click the box below for my sweet surprise. This is at full volume also. That is how quite it is (you have to click to find out what "it" is).

I found some simply thick in Wyoming, Mn (since we have none here). The pharmacist in the Wyoming hospital pharmacy told me who this pharmacy should contact there to help them figure out how to get it here. Thank goodness for some positive helpers. Sal dropped the kids off a little bit ago and is going to Wyoming now to buy it.

They did feedings all night with the rice cereal and he only took 2ml or so each time. I then used the last of the simply thick at the 10am feeding and he drank 18ml. YEAH!!! Praise the Lord!!! The doc's came in later and said how they are impressed at how well he all of a sudden is doing. Also, he had a chest x-ray that was not scheduled because they thought he may have problems and they looked good. Another, say it with me, PRAISE THE LORD!!! Let's keep the prayers rolling.

More audio to come. EXCITING new find.....
this is an audio post - click to play
Gonzalez's Heart

Ok, so I did not get the surprise in today. Hopefully tomorrow. Just wanted to let you all know so you did not think I was leaving you hanging on purpose. While you are all waiting, what do you think it might be? Let me know. Kelly has her guess in.

Jaden was doing fine when I left. Unfortunately, they did not get the thicken stuff by his next feeding so we had to use the old combination we were using and he did better then in the past but not as good with the stuff Steph found.. I will search down the thicken stuff and go buy it first thing in the AM since they do not know when or if they can get it.

Robyn came with this morning to see Jaden and left her glitter from her shirt all over Jaden and the room. I was picking it off all day :-) Then tonight Kelly picked me up and we went and got our hair done. We also went out for Thai food (yummy). She then decided she would have a sleep over because I had a rough morning I guess. How sweet is she. She also wanted to keep me up late and watch the midnight bats fly outside or something.

Anyway I will update you all tomorrow. Nite Nite, Steph

Friday, April 28, 2006

Gonzalez's Heart

Oh you guys I am so happy right now. Steph I want to thank you more than words can say. As you all know, Jaden has not been eating at all through the bottle. We have been lucky to get him to drink 1ml in a feeding which is basically drops. The most he had was 4ml and that was one time.

Well Steph, you made me prove the speech therapist and nurse wrong. I printed out the info on the "simply thick" you found and I marched into the room right at Jaden's feeding time and I asked them if we could try using this product to solve the thinking problem (or lack there of it I should say). Well, can you all guess what they said? They said that does not work any better then the cereal. They said that studies are great but they have done trial and error and this stuff won't make a difference. Well I would not budge and I said, "everyone's breast milk is different and we don't know how it will work since we have not tried mine." So they got some of it and mixed it up. Well guess what happened?

Jaden not only drank, but we had to add more milk mixture to the bottle. He ended up drinking 18ml. I about died on the spot. I can not get this grin off my face. I told them anything was possible, you just have to try. They did not know how to respond to this. I said "obviously this worked really well." The speech guy then said well this is VERY expensive. He said it is $1 a packet. We would use one at each feeding. ($8 a day minimum). He said the other problem now is that he only has 2 packets left so what did I want to do. I said (as Steph found there is a pharmacy in Woodbury that has it), I will go buy it then. At the end of our conversation, he said "I guess we should be able to figure out how to get some."

I was so excited to have stirred up this excitement. These people are wonderful and smart but many of them just want to go by the average and nothing more. They have all been so discouraging about breast feeding. I am here to show them all that there is so much more to life then the average. I even told him that Jaden has not been the average as he "sailed" through all of this so far, so to hold on because Jaden is just waiting for the right moment and then he is going to get his sprinting shoes on.

Of course, this could have been a one time thing to happen but it opened these peoples eyes that you have to really try to know. I still have no work on when ENT is coming. And I do not have your cool surprise ready quite yet. Keep the prayers flowing, they seem to have worked today with Jaden's feeding.

Love you all, Steph

p.s. Steph, I don't mind at all that you are a "blog hog."

Thursday, April 27, 2006

Gonzalez's Heart

Wednesday night Tammy, mom and Robyn came to visit. We had a little party in Jaden's room. Mom thanks again for the wonderful presents. The color coordination was wonderful. We stayed until around 11pm or so. Jaden was not feeling that well and when we tried to leave he would cry so it made it really hard. We then raided the fridge at the RMH and then Robyn and Tammy had a sleep over. We did not get to bed until 12:30am. We all had fun. Robyn is spending the night again tonight. This does make my week go by a lot faster and it helps me to get my mind somewhere else.

These last 2 days have been a little difficult for me with Jaden. He has not been drinking hardly anything from his bottles. We have tried 3 different nipples and have been thickening the breast milk but have a really hard time because the protein in the breast milk does not allow the thickener to stick. So we are having some trouble with that.

They also want to send Ears Nose and Throat in tomorrow to do a scope of his vocal cords and folds.. They are worried since his voice is still so soft and he is not eating well that maybe he has some damage done to his vocal folds. So we have hit a new set back as not only does Jaden need his milk thickened, the breast milk not adapting to the thickener, him having a hard time figuring out how to use the bottle, but now also his throat stuff. I have asked for somewhat of a time frame until we might get to leave and they said a minimum of 2 weeks. (I had to ask many people before even getting this answer, so I am thinking that might mean longer then shorter). Of course they are not sure how long until we can get everything figured out but it will be awhile. They said that if nothing major is wrong with his vocal stuff, that it could take up to 6 months for him to have it all normal and be able to hear him well. Of course this means possibly 6 months before he may be able to eat normal. I will let you know the details tomorrow from the test.

I also have a cool surprise I am working on for the blog. It will probably take me a few days but keep checking back. I am hoping it works and it will be really cool for you all. Lets just say that it may help you feel like you are able to experience Jaden better. I know this is a teaser but it is something exciting for me to work on and keep my mind on other things.

Hope you all have had a good week so far and I will write more tomorrow. Love you all, Steph

Tuesday, April 25, 2006


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I am posting a few pictures. The first 2 are of the kids holding Jaden from this weekend. Ethan would not give him to any of us to hold. It was so cute how much they both cared. The 3rd is Jaden's "guardian angel" nurse Steve. He we believe was put in our path to give the love and support that Jaden needed to help him get through this. The 4th is what Kelly said looked like Dennis the Menace hair. How cute. And the last is of grandma holding Jaden. How cute they all are. (I have been having technical difficulties so hopefully these will post. If not check back tomorrow).

Twila from church came to visit today and was the first from our church family to hold him. Thank you Twila for the wonderful gifts. Jaden already read the book you gave him many times. He is a great story teller. Mom and Kelly came tonight and had dinner with me. They both enjoyed holding Jaden with all of the lines and other stuff gone.

Jaden's x-ray did not go as I had hoped and prayed for. When he swallowed breast milk, a little of it got into his airway. When they gave him a thicker consistnecy, it went fine. What happens is because he has to breath so much faster (which makes it harder), his brain does not tell his flap that protects his airway fast enough to close with the faster flowing breast milk. So for now he has to have breast milk mixed with rice cereal (to thicken it) and then also with fortifier (which is powder formula) to help bond the breast milk and rice cereal together.

So for now, he will not be able to breast feed. This makes me extremely sad :-(So we need lots and lots of prayers so that he is able to get strong enough to be able to close that flap so he can nurse from his mommy. It is possible but could take a very long time. I told the doctors that he is going to study hard and learn it really fast so he can get an "A" on his exam and start nursing.

I will let you know how tomorrow goes. Love to you all, Steph

Monday, April 24, 2006

Gonzalez's Heart

Just a quick update and prayer request. Overall, Jaden is doing very well. Everything looks good and all of his tubes and lines are out but his feeding tube and then one other line. We started bottle feeding today and it went ok. It is so amazing what steps and things you have to do to teach a child to drink from a bottle. It is so different when you have a baby and it nurses right away. The process to teach a 3 week old baby who has never eaten on his own and has had heart surgery is so intense. You have to make sure they are not stimulated by light and noises around them or they get to stressed out and pretend to be sleeping. You have to watch his breathing, his nostrils for flaring his mouth and you even have to hold them a little different. There are so many things. Heart babies get very stressed when eating and if you do not catch the signs then other problems can occur.

The prayer request is for tomorrow. Jaden will be having an x-ray at 1pm with him drinking from a bottle and they will watch to see how things go. Heart babies do not have strong neck/throat muscles so sometimes when they drink it can go into the lungs. They also can have reflux. If either of these problems happen, he may not ever get to nurse. When we fed him his first feeding, he was choking some on the milk and then he sounded raspy for awhile after. This is when they were concerned if he may have a problem. So please pray that he is fine and will be able to drink without the milk getting into his lungs. This is such an important part of parenting for me. When the cardiologist was explaining all of this to me, I had to do everything to hold back the tears. I do not want to worry over it unless I have to.

Anyway, I will let you all know how it goes tomorrow. Thanks to everyone for their help. Mom, I hope getting Ash ready for her dance pictures was not to difficult and thanks for watching them so many days each week. Thanks to all of you who will be helping with the kids (watching them and driving them around), and thank you all who are bringing meals to my family. Karen, I have been meaning to call you and thank you for the wonderful care package and cute baby blanket you sent. The snacks have really come in handy and I will be bringing the blanket to the hospital tomorrow.

I love you all and we are so lucky to have you all in our lives. We have such an incredible support system. Love you all!!!!!

Love, Steph

Sunday, April 23, 2006

Gonzalez's Heart

I am so sorry I have not written for a few days. We have had a busy couple of days. Robyn and I had a great time shopping. She thought since we had a few hours we would make it to a few places but only made it to one. We both bought some really cute clothes.

Friday they moved Jaden to a room all the way at the end of the hall. It is the place they go on their way out (to the floor as they call it). We have had many things happen in our rooms. This last one we were in we had an 11 year old come in because he over dosed on his medication on purpose. He told the doctor that his sister always told him she hated him and that is why he did it. It was a very sad thing to hear and see. We have not been anxious to move to the Children's floor because we go from one nurse per child who is in the room always to one nurse per every four who is not in the room. However, after this 11 year old came to our room, I guess you could say we were ready.

Saturday afternoon we got the word that Jaden was moving to the floor. We were very nervous. This means one step closer to home though so it helps some. So we were moved to the floor and it has been pretty good. Jaden still is hoarse and can not really be heard when he cries so we do get nervous that no one will know that he is crying if we are not there. They say his stats will tell them he is crying. He has been doing good sucking his pacifier so they talked about starting to feed with a bottle or breast feed soon.

So this morning, they took out his last chest tube and said he could start tomorrow with bottle and breast because he is doing so good. We were a little surprised because just yesterday they were talking more like Tuesday or Wednesday. I will meet with the speech therapist at 10am and we will hopefully try. There are many things that have to fall into place in order for this to happen and his stats have to remain at certain levels in order to continue. So I am very excited and actually nervous as I hope it goes well because I am really ready to nurse.

Sal and the kids got here late Friday night and we have all had a good time. We went to target today and bought each of the kids a toy and they both got to hold Jaden a few times this weekend. Of course Ethan kept asking when his feeding tube will come out. But this is the first time Ethan actually wanted to hold him and it was the sweetest thing in the world. He showed so much love for Jaden. We have all had a good time and enjoyed ourselves. They are getting ready to leave and we are all not wanting the moment to come. But hopefully soon we will all get to go home.

Have a good rest of the day.

Love, Steph

Thursday, April 20, 2006

Yesterday was a good day. Jaden got a lot of loving and holding time in. I was at the hospital with him all day. Mom came around 4pm and was the 1st loved one to hold Jaden. It was really nice for the 2 of us to be there with him. After that, mom and I went back and had dinner at the RMH. Robyn and dad came over after dinner and we went back to give Jaden some more lovin. Robyn had a sleep over to help keep me company. Thanks sis.

Today went good. I was at the hospital all day again and held him for a few hours. I was so tired and wanted to go back and take a nap but Jaden would not let me leave. He was awake and happy and looking all over so I couldn't put him down. He finally let me leave and I came back and took a nap. After dinner I went back and then Robyn came again when she was done with work. They took 2 of his chest tubes out this late afternoon. After they do that they take an x-ray and they saw that he has a little air in his lung. This can happen when taking these tubes out so they have to watch him carefully. They will do another x-ray tonight and if it gets bad or does not go away they may have to put it back in. We will see tomorrow. Robyn is having another sleep over and we will probably go shopping tomorrow. YEAH!!! I need some new clothes.

MOM, to answer your question from your comment the other day, not only do I have the best sister in the world, but the best everyone in the world. Sal and I have been truly blessed by God to have you and all the rest of the incredible people in our lives. We are very lucky.

Well that is good for tonight. I will let you know about the chest tubes tomorrow.

Love, Steph
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Wednesday, April 19, 2006

Gonzalez's Heart

Cindy, you are right. One of the nurses already said that we better plan on calling him "Super Star" when we get home because that is the only name he will know. And yes dad you are so funny. I know you think you heard him say grandpa. It will be great as we will be able to understand him say grandpa because guess what? They took the ventilator out around 2pm and he is doing WONDERFULLY!!!

It is so exciting to actually be able to see his sweet face. I have only seen it in full without anything about 3 times or so. It is nice to finally get a look at how our boy really looks. I have been pestering the nurse for awhile and she is about to let me hold him. I can't wait!!! And do you guys know what this means? His first visitor tonight will probably get to hold him also.

This day has been so great and sad all in one. God probably took Amber yesterday on purpose. He knew I would have the great joys of Jaden's advancement to help me deal better with the loss. Who knows.

There will be pictures of Jaden with out the ventilator posted later this evening. Make sure to check back then to see how super cute he is.

Love to you all. Sorry I don't want to write anymore, but I can be holding Jaden right now and I guess I could say, I would rather be doing that.

Love, Steph

Gonzalez's Heart

Thank you all for being so patient. I was not by the computer yesterday at all. Before the update, Sarah, let me know when works best for you. You can call me. (320)260-9096. Leave a message if you get voice mail. I am at the hospital a lot and can not use it. Cindy, you can stop by also. I am not sure how far we are. You can find out and then give me a call if it will work. And Megan, why are you at work reading the blog? You silly girl, you should be working :-) And yes if you were here we would just be crying. You are so correct.

They closed Jaden up Monday evening and Dr. Harrington came out and said he was a "Gem" and it went wonderfully. He did pretty good through the night. His blood pressure dropped a bit but this was expected.

Yesterday morning I was here for the rounds and they called him "the star of the place." It is so encouraging to hear the Dr's so proud of how he is doing. He did really good through out the day.

Now for some very sad news. (You might want to grab some Kleenex for those of you who are extra sensitive.) Sal showed up last night. Well he did not come for a happy reason. As many of you know, Amber our dog got sick right before we had to leave. Well, she passed away last night around 6pm. She had a heart attack out of all things. She was at the vet and Sal was there talking to the Dr. about the surgery that they wanted to do on her and while they were talking, it happened. They tried to revive her but it did not work. It has been so hard for me!

We will not tell the kids until Jaden and I get home. They knew she was staying at Wendy's house so we will just let them think she is staying there still. It is going to be so hard to tell them. They have been asking to see her for days. They have complained that they miss her so much. I think that Amber took the pain and problems of the heart so Jaden would not have to. I had forgotten that she had a heart murmur and with her Lyme disease and a few other things that were going on, it made her heart struggle and stop. I am truly sorry to tell you all this news. I just wanted to make sure that for those of you who knew, that you would not mention it to the kids. I want to make sure that I am there to help them through this when they find out. We will not tell them until I come home.

The Dr's. Are still talking about taking Jaden off the respirator this afternoon. They say once he is off, I will get to hold him all the time as long as his blood pressure is good.

Please pray for Jaden's strength but also all of us as we work through the loss of our dear Amber. Sal will have to avoid the kids questioning of Amber and not be able to grieve as the kids will always be around and I will have to grieve without him. I am feeling very bad as I was not there to take care of her when she was sick and before we left I was so busy getting ready, I did not tend to her like I should have. I know it is not my fault and there is not much I could have done, it is just my mother inside me needing to be the care giver.

I will know that you are all praying for us and we do not need to hear about your sympathy for Amber. That will just make it that much harder for us to cope. I am trying to stay strong when I am with Jaden so he does not feel this emotion from me.

Thank you all again for your continued support and prayers.

Love to you all, Steph


Monday, April 17, 2006

Gonzalez's Heart

Today was a very mixed day emotionally. Jaden did really good over night again and this morning he got the go ahead to be closed. They said they were going to close him this afternoon.

Our friend Steph came at lunch time. Her and I went over to see Jaden. We were there for about 2 hours and at least 45 minutes of the time we were there he had his eyes open and was moving his arms around a lot. He is pretty sedated but does have awake times and it was when we were there. That was very cool. Steve was helping with the baby next to us so I did not want to leave to make sure Jaden did not hit his open chest or anything. The baby next to us went bad. They had to bring the crash cart in and the room filled with a lot of people. We were trapped in and had to listen to this through the curtain. I told Jaden he could not hear this and turned up his music. I had a really hard time dealing with this. I was almost in a panic. It just was to close to home. This could have been and still could be Jaden. He is totally in the circumstance that it could be him. It was so hard. I almost started to feel faint. It was not a good feeling and it affected my whole day. The baby ended up being stable and we were able to leave but he is still not doing well at all.

Sal and the kids left and that was very hard for me. I walked them to the car and didn't even make it there before I was crying. It is so hard for me. I know I will see them in a few days but it is just so hard. I did not let them see me cry but I could not hold it in when I said good bye to Sal. I felt a loneliness when I got to our room. I then decided to go back and see Jaden. When I got there, the doors were closed with and "OR in Progress" sign on it. They were closing him. When they were done, the surgeon came out and said, "he was a gem. It went fabulously." I was very excited it went so well. Kelly, dad, Mattie and I went and saw him tonight and it was so nice to see him yet another step closer to recovery. However, while I was in there his blood pressure fell pretty bad and the nurse even got nervous. This was the worst I had seen anyone respond to anything for Jaden. This was not good to see. By the time we left though he was doing ok but the nurse said tonight problems would be with blood pressure if anything. They will most likely have to give him more blood. He was already on the borderline for needing it.

Anyway, sleep overs start this week. (I am glad for this.) The kids go back to school tomorrow and they are excited. We have 2 pictures that Ashley gets to take to school with her and she asked if she can take them anywhere to show everyone. She is very excited for everyone to see them.

Well, I will let you know how tonight went for our little cuttie pie. Love to you all, Steph

Sunday, April 16, 2006

Gonzalez's Heart

Happy Easter to everyone!!!

I am sorry we have not updated for a few days. We have been so tired. We did not realize how much energy has been taken from us. The anticipation of everything kept us going and then once we saw that Jaden made it through surgery and was pretty stable, it hit us hard. We have been sooooo tired and so have the kids.

Friday through the night, I checked on Jaden a few times and he was doing well. He has had a few more blood transfusions. A few reasons for that is one, they take so much blood for lab and his body is so weak, he is not able to replenish it. The 2nd, is to help keep his blood pressure stable. That has been one of the hardest things to keep stable. Otherwise, he did not retain to much fluid. They say it is normal to go into surgery weighing 7lbs and coming out weighing 10 or 11lbs. I am not sure where he is at but he did not gain much. This is very good. It means he is peeing out all the fluids that are going in and his body is doing the work that needs to be done.

Saturday was another good day. He was stable all day and Steve his nurse said he was trying to think of what to write in his report because he did so good. YEAH!!! There is a group of us with babies that are having some major issues and surgeries. Probably 6 of us. We all talk with each other and listen and learn. Jaden has been doing the best and every time one of them asks or we talk about it, I get to say it is because the power of prayer. I get to tell them that we have people all over the United States praying. It is so cool. I know that is what has kept us so strong. Without it, I am not sure where we would be. It has been miraculous to see his open chest. They have a big clear yellow tape over his entire chest and then the incision which is a oval right now. Where to opening is, there is a little piece of canvas which is stitched to his skin to ensure nothing sticks to the heart. The reason they have to leave his chest open is because the heart is to swollen and inflamed and it is to big to close the chest. You can see the heart beat really strong against the canvas. The only thing between my finger and his heart is this very thin piece of canvas.. It is so unbelievable!! Only God could give someone the brain to come up with this survival technique while the heart gets to its normal size.

Today the RMH left an Easter basket at our door and then when we got to Jaden's room, he had an Easter basket as well. We did not do too much. We were so tired that we rested quite a bit and just spent time together. Ashley and I went alone once today to see Jaden and we read to him by his bed. It was really nice. I told Ashley we would read 1 story and we read 3. She told Steve that she tricked me to read 3. It was very special.

Sal and the kids will leave tomorrow night to go back to St. Cloud. This will be really hard. The kids are excited to be back but they don't want to leave me and they want to stay with their baby brother. It will be hard for us all to adjust to this next step in our journey. Those of you who wanted to help that live in the St. Cloud area, this is the time we will ask. Sal and the kids will need meals. I want to make sure they are not eating McDonald's all the time. So anything that can be frozen and easy to through in the oven would be great. Fruits and veggies would be nice as well. And a quick word of advice, don't ask Sal if he needs meals because he will say no.

that's it for now. I will let you know how tomorrow goes. The word is that they will be closing his chest tomorrow. This is a surgery that is not as intense but still is major. After they close him, a lot could happen and go wrong. So please keep those prayers coming. We are past the 1st surgery, but no where near home plate.

Love to you all on this Easter Sunday, Steph, Sal and the kids

Saturday, April 15, 2006

Happy Easter Gonzalez Family!

How is Jaden today?

I am going down to visit Grandma Roberts tomorrow. I will get there about mid morning and then take her out for lunch. She loves to go for drives so I am sure that we will drive all over Fayette County! I usually take her out for dinner before I return home but tomorrow I am guessing there will not be a lot open in Clermont or West Union!

I hope that you and your family have a wonderful Easter!
Hello and Happy Easter to all of the Kruegers!!!

Luv, Stacy

Friday, April 14, 2006

Gonzalez's Heart

So far things are going pretty well. We have been checking on Jaden and I was just in there for about 30 minutes. While I was in there, his blood pressure and other stats went pretty low so they had to do some things pretty fast and they would push and hold on his liver to help send blood to his heart to help it get up higher. In a matter of minutes he was totally fine.

It is pretty crazy to look at him and all the things that are hooked up to him. They have 2 towers full of lines and meds and stuff to help him out. He has 3 tubes to help drain blood, and his ventilator. It is so crazy when looking at him to imagine someone came up with all of this stuff to help a child live. It is truely God's wonderful power that made any of this possible.

We are going to try and get a little rest now so will update you with any new info when we get it.

Love, us

Gonzalez's Heart

Gonzalez's Heart
Well we talked to the doctor, she said everything went great. He is off of life support, his little heart is beating on its own. She said that his breast bone will remain open for a few days. She talked about maybe closing him on either Monday or Tuesday. They are in the process of moving him back up to the 5th floor. We will get a chance to see him in about 15 minutes.
Gonzalez's Heart

This morning Sal and I took the nice walk here and saw the beautiful moon that looked pretty full. Not sure but it was a great way to start this difficult day. We got to the hospital around 6:15am. I did not last too long before I started crying. I asked to hold Jaden right away and they let me. I was able to hold him about 45 min. and used about half a box of kleenex while holding him. I talked to him alot about what we expected from him today :-). He listened very carefully. Steve his nurse who I say is his "guardian angel" came in to check on him before he went to surgery and the minute Steve talked Jaden woke up and opened his eyes. It was really cool to see how he reacted to his nurse.

They took him out of the room around 7:30 and we all went down to the 3rd floor. We then got to give him big kisses before they took him. As Kelly told you, they started surgery at 9:47am and had made the incision and came out good from the anestesia. They called down from the surgery room at 10:45am to let us know he is now on the Bi-pass machine and are starting to sew on the graphs. They said things were going well.

So we are all here hanging out. Robyn (with a Y) and mama Rose are exchanging back rubs. Mattie is on her computer. Dad is reading the paper and Sal is shaking his foot being his funny annoying, nail bitting self. Of course I am sitting here being cool.

We will talk later. Robyn will post a picture from dad doing our "adult story time" from the book that Kelly bought, it is supposed to be funny but has only been funny when dad read it (thanks Kelly for the great past time book and of course the great surgery gift, brillo pads).

Love to you all, me

Thursday, April 13, 2006

Gonzalez's Heart

The night before.....

We are doing good considering tomorrow is the day. Sal had to go to St. Cloud again today to get a new truck and driver on the road. He just got back a little bit ago. Kelly and I went to see Jaden tonight and ink padded his foot and hand print. Our friend Robin P. sent this cute double frame that came with an ink pad to do his feet and hands (thank you Robin for the wonderful care package. The kids have had fun with the paper and marker kit). So Kelly and I did it tonight. It worked really good and is so cute. The nurse says he has a mit not hands, his hands are that big I guess. I thought that was funny.

Sal and I will go there tomorrow morning at 6am. I got to do one of his scrub downs tonight which is preparing him for surgery. It was a bitter sweet moment. Moving on to the next step, but preparing him for such a major operation.

I better go. I have many things to get together for tomorrow. Thank you all for the prayers. Keep them coming.

Love, Steph
Gonzalez's Heart

I love reading all of the bible versus, quotes and seeing you all talk with each other. It is so cool for me to see.

LET THE PRAYERS FLOOD OUT!!! Surgery is going to be tomorrow unless our little stinker does something tonight. The surgeon meet with us this morning and explained everything all over again. She also talked about Jadens organs, heart and everything else that they have been watching and testing. She said everything looks really good. A few things were a little large but she said that actually helps for surgery. She sounded pretty confident with everything. He is a good size and his heart is working very well. By the time we were done talking with her, we felt at ease so much more then we have. Sal even high fived me. It felt nice to be assured that everything at this point looked so good.

The kids will go to my friend of 18 years, Susan's house. She took tomorrow off and is going to do some Easter fun with them and her 2 boys and take them all to the zoo. They will probably stay there Friday night as well. I told her she might want to try one night before comitting to two. She laughed and said she is sure she could handle it. (She might think twice after chasing after Ethan for that long :-) ).

Today I got a wonderful massage. Dad and Mattie got it for me. (Thank you guys, it was a very sweet thing to do.) She did a fantastic job and she has a 6 year old boy named Jaden. She spells it the same way. I thought that was pretty funny.

We have to be to the hospital by 6am tomorrow. It will take until at least 3pm to complete the surgery. I will write more tonight if there is any new news. Otherwise, once they get started and tell us where they are at, I will write. I will try to write often tomorrow to keep you all updated with info. If I can't, I will have someone.

PRAYERS, PRAYERS, PRAYERS and even more PRAYERS. Love, Steph

Wednesday, April 12, 2006



I wanted to try and post multiple pictures. To see these pictures larger, click on each one. The first one is when Sal got to hold Jaden for the first time since right after he was born. He was very nervous. There are lots of lines and it gets a little tricky handling him. He did wonderful and held him for along time. As you can see Jaden in the 2nd picture was looking at his daddy alot. This was the most we have seen him with his eyes open. They also had a lady doing music therapy in our room today. She played the guitar and indian flute for each of the babies. I think Jaden enjoyed it. He went to sleep really well. It was so sweet. I got to hold him again when Sal was done :-)

The next 2 pictures are from the RMH. This place has something for the kids almost everyday. They have crafts, cooking time, therapy dogs come to visit, movie's in their home cinema and this inflatable night. The kids had so much fun. Volunteers come and play with the kids. They got so sweety and dirty and had soooo much fun. Just wanted to show you all a little what they do around here for the kids. It is wonderful.

Jadens temp is down a little. He over all is doing good. He was still pretty crabby today. I think the respirator tube is making him really crabby. I keep telling him that they tried to take it out but he did not want to do the work and breath on his own. Tomorrow we will definitly hold him alot more. I am more nervous about the surgery now that it was postponed. Hopefully Friday is a go. I need to get on with it.

We will talk to you tomorrow. Love, US
So today has been a wonderful day in the Gonzalez world. Sal had to work on bills so he stayed back with the kids and let me go to the hospital early. The nurse that is on today is wonderful and she asked me right away if I wanted to hold Jaden. Of course I said yes. So I got to hold him for over an hour. You would not imagine how it felt. Then the rest of the family came and Ashley got really excited and asked if she could hold him. The nurse said yes right away as I was about to say no. (Thinking they would not want her to.) So Ashley got to hold him before daddy. How nice of daddy to let his daughter hold his son first.

So Ashley held him for quite awhile and was so excited. She even kissed him. It was so exciting to see the joy in Ashleys eyes to hold her baby brother. We asked Ethan is he wanted to hold Jaden (while he was trying to pull all of his lines off) and Ethan said yes but he wanted to eat candy that the State Trooper and McGruff brought for them. We told Ethan he could hold his brother or eat candy. What do you think Ethan choose. For those of you who know Ethan really well, I am sure you guessed the candy. Ashley said she wanted to hold Jaden over getting the candy. How funny are they.

So we will go back around 3:30 today and bring the kids to the supervised playroom and then finally daddy will get to hold his son. YEAH!!!!! He is very excited and I will post the picture of my movie stars. The pictures are not posting clear. I am sorry about that. Not sure why but fuzzy ones are better then nothing.

Love to all, Steph

Tuesday, April 11, 2006

OK so finally after trying many times I was able to post the picture of when I got to hold our little stinker. Although the picture quality is still not good. Blogger must be having issues.

Today the kids and I went to see Jaden (Sal had to go to St. Cloud to take care of some work.) When we got to the hospital, the power was out. We had to walk up to the fifth floor and there were 2 sets of extra long stairs for each floor. Still recovering from delivery, I have to say I was a little tired by the time we got to the 5th floor. I also thought about how he was supposed to be in surgery and power had been going on and off all morning so I guess good thing he did not have it today. They do have emergency back up but still there is no emergency back up for the surgeons concentration and focus.

We went in to see Jaden and he still had a fever and was frowning his brows alot. He was a little on the crabby side today. Ethan kept poking around at Jaden so I had to take them out. Well we just found out last night that there is a play area and if there are volunteers we can drop our kids off for awhile. I brought the kids and got to spend over an hour of uninterupted time with Jaden. I was in HEAVEN!!!

The doctor came in around the time Sal got there from St. Cloud. He said the infection looks to be from either the birth canal or swallowing some fluids while in the process of coming into this world. (I am a little confused with the verbage so sorry if you don't understand.) They also did the tests on his kidneys and from what they saw everything looked to be working fine. They were worried that his urine would go back up into his kidneys. It looked as though it is fine and at this point nothing is wrong with his kidneys.

The surgery is still scheduled for Friday. They will run more tests on Thursday and then let us know then if Friday is a go. We really hope it will not be pushed back again. We are very anxious to get on with this whole process.

We want to send out many thanks to everyone not only for the support on this blog but also for the flowers, gifts, groceries, money towards the Ronald McDonald House and help watching the kids. It means so much to us. We have gotten so much from you all in prayer and in thoughfulness We are getting support from others we would never imagine it to come from. We have gotten support from our friends family. How thoughtful and incredible that is. Just look at what God has given to us. We are the luckies people to have all of you in our lives!!!

Thank you, thank you, thank you. We love you all, Steph and Sal

Monday, April 10, 2006

Gonzalez's Heart

First off I just want to thank you all again for your support. I have a count tracker on the bottom of the blog and it has gotten over 900 hits. I can not believe it!!! You all are so awesome. God has given us the best group of family and friends anyone could have.

Next I want to let you know that as Jaden has already shown us, he is totally in control and wants to make sure we know. This morning, he spiked a temp of 101. The doctor said that one of his meds he is on is very common to cause a fever but his was a little too high. So know they are waiting for blood work and want to make sure it is that and not an infection somewhere in his body. So unfortunately they have changed his surgery to Friday. Good Friday. So keep the prayers coming that what ever his body needs to do that it does it. Like I said, he is in control of the situation and wants to make sure we know. What a little stinker he is. I guess God just wanted to make sure that we and Jaden were all ready for what is going to happen to him.

I will let you know tomorrow what the test results showed and I will try and post some more pictures. Because he had a temp, Sal was not able to hold him.

Talk to you all tomorrow. Love, Steph

Sunday, April 09, 2006

Gonzalez's Heart

We had a very busy weekend. Friday night we took the kids to see Jaden again. They love seeing him. Especially Ashley. My uncle and aunt Curt and Diane came to visit which was really nice.

Saturday, my cousins Stacy and Krista came to visit. While we were at the hospital, they tried taking the ventilator out. While they were doing that, I was holding Jadens hand and he would squeeze my finger. Everything they did though would not make him take a breath. They had to pump him and after so long, they decided they had to put the ventilator back in. That was pretty hard. After that, our brother in law Bill and Bill's mom came to visit. Sal took them to see Jaden while me and the kids took a nap.

Today Sal, the kids and I went in the morning and Jaden was very responsive and alert. After lunch, Sal's sister Wendy and dad Jose came to visit. They had not seen him yet. Sal brought them over while me and the kids took a nap again. When we woke up, my brother Ryan and sister in law Tammy came. Wendy watched the kids while the four of us went to visit. Jaden opened his eyes today and it was so cool to see. While we were there, I also got to hold Jaden again. It was so wonderful. He had been pretty active and then when I was holding him he totally cuddled into my arm and went right to sleep. It was so wonderful. When we were leaving the hospital, we heard someone shout out "Sal" and looked to see one of my dearest friends Angie and her boyfriend Chris, so we turned around and went right back in.

We had a great weekend and Jaden took many new steps. He also got started on milk. He will get 1oz a day. I was so excited. It looks as if he is getting stronger. Sal will hold Jaden tomorrow and we are both very excited as he has not had a turn yet.

I am sorry I tried to post a picture but it would not work so maybe tomorrow. Surgery is Tuesday at 8:15am. We will need to be there by 7am to see him before he goes in. Please do some major praying and have everyone praying. It will not be done until at least 4pm. They said that the rest of the night will be very long and hard and no one will get sleep as he will be all over the board. So keep the prayers rolling as much and often as you can.

We will write again tomorrow. Love to you all, Steph


Hey Steph and Sal - It was great to see you yesterday. Baby Jaden is so cute! I'm glad Kriata and I got to spend a little time you. Sal - I forgot to tell you that the meatballs I brought are a weight watchers recipe. Let me know if you like them! ;-)

The Ronald McDonald house looks like a wonderful place to stay. I think the kids will enjoy their time there. I am glad that you have somewhere you will be comfortable while Jaden is recovering.

I will be praying for Jaden on Tuesday! He seems to be a strong little guy! Let me know if there is anything I can do.

Keep us posted.

Luv, Stacy

Friday, April 07, 2006

We checked into the Ronald McDonald House and the kids absolutely love it. They have already played and had story time with a group of kids. We were put in a really cute but small room and then today we were moved to our other room which is much larger and works way better for us.

We then took all of these pop tabs that Ashley's class collected and poured them into a bigger McDonald collection house. The kids had alot of fun doing that and Ashley was so proud of what her class had collected. Still continue to collect them if you are. We will be here for along time and would love to continue to fill their house with alot more tabs.

For those of you who have asked, the address here is: 621 Oak St. Minneapolis, 55414 (612)379-1429. We are in room 131.
Since the surgery will be on Tuesday, the surgeon wanted to transfer Jaden so he could be stabelized a few days before. This picture was when they brought him by ambulance to the other hospital.

This is when I was able to hold him for about 10 minutes. It was wonderful. Sal and I were also able to ride in the ambulance with him to the hospital.

This moment was a bitter sweet one. It was basically the next step through our journey. We wanted him to move to the next hospital because that meant closer to surgery which means closer to recovery which means closer to coming home. However, it also means closer to the scariest moment of his life. His life completely put in the surgeons hands to fix. God will show his mighty power at this point more then ever.
Ashley and Ethan's first time meeting their baby brother Jaden!!! The nurse took and printed a picture of Jaden so we could show the kids and prepare them for what he looked like before hand. They did pretty good.

Ashley was very quiet and Ethan wanted to touch and ask about all of the things hooked up to Jaden. They love to visit him. Just today when we went to visit with Uncle Curt and Aunt Diane, Ethan told the nurse she needed to be quiet because we were in the hospital. He also told her she needed to take all of the stuff off of his brother. Totally a Ethan comment, very funny and sweet.
Gonzalez's Heart

You all are so awesome. It feels so good to see you all on here and the support you have all given us. It is so uplifting!!! I am sorry I can not keep up. Luckily Robyn can help with that. Yesterday was a very busy day for us as we tried to spend time with Jaden, check out of the hospital and into the Ronald McDonald house. We were so exhausted by the end of the day.

I have much to tell and many pictures to post. The room we have here is very small and we are moving to a new one later today so we have not unpacked anything. Once we do I can get to our computer and post the pictures. I will also update you with the pictures. I am anxious to do that.

Jaden did get moved this morning and I was able to finally hold him. I was crying of course and could hardly see him. It felt so wonderful to hold him for a few minutes. I also told the ambulance drivers that we were going to hitch a ride on their bumper so they decided to let us ride in the ambulance. I have a picture of that.

So I guess I better quite talking so I can tell you all about it with the wonderful pictures. I will get the address to here also. Talk to you all a little later, Steph

p.s. Krista, we would love if you stopped by. You can call Sal's cell 320-761-5000. That is where we can be reached.

Wednesday, April 05, 2006

Gonzalez's Heart

Little Jaden is so sweet. He is keeping everyone on their toes in NICU. They have been having a hard time keeping his blood pressure stable so they have been upping 2 of his medications. The cardiologists did not want the meds so high so they decided that they needed to give him a blood transfusion. This would increase volume that is needed to help keep him stable. This was hard for us as you never know where blood comes from. Jaden is 0- and Sal is also so he is calling the Red Cross tomorrow morning to see if he can donate his blood to use with Jaden. Hopefully he can and hopefully he can get it done by his surgery. If not by the surgery, he will still need transfusions in the future so we will still do what we can.

The surgeon wants Jaden moved to the hospital across the river where they will do the surgery on Friday. At this point, they are planning on doing the surgery on Tuesday the 11th. When it is official we will let you know. It will be first thing in the morning and probably last around 7 hours.

I am being released tomorrow around lunch time and then we will take our things to the Ronald McDonald house. We will go their first to bring our stuff in and then pick up the kids from Ryan and Tammys. A HUGE thanks to Tammy for watching the kids for us. Ashley and Ethan have been staying there since Monday night. We are not sure what we would have done without this help. THANKS!!!

Sorry no pictures tonight. Robyn will be posting a few and she did not have her cord for her camera today.

We will write tomorrow... ;) Sal and Steph
Gonzalez's Heart
After they broke my water, the contractions became very consistent and much stronger. Around 2pm or so, I knew it was not going to be much longer. I told the nurse I wanted to be checked and that I wanted an epideral. She said fine but was in no rush. I was persistent and kept asking. My contractions got severe pretty fast. I told them I needed the epideral right away and that I was going to time the man and that he should probably be sprinting his way up.

They gave me the epideral through extreme pain. During one of the contractions, I said it felt like I might need to be pushing soon. They all started to get nervous. Minutes after the epideral, I said I was ready. At first they did not move any faster because they thought the epideral just needed to kick in. Then they realized that I was not kidding when I said they need to help me because I was ready. They then started panicking and were telling me I have to wait to have the baby until the doctor gets here. I kept saying the baby is ready and they needed to get the doctor.

Our family was in the hallway outside the door and they were getting nervous because they heard people saying "get the doctor here now, well find a doctor then we need someone now." The senior resident doctor came in and I was past ready. She quick came and after 3 pushes the baby was here. The main doctor was running up the stairs trying to make it on time and he heard the bell and announcement. He was to late.

The NICU team took Jaden right away to do things and check him out. They then brought him over to me and Sal to hold for about 1 minute. They then took him to NICU. They had to do a lot of things to him. They did an Echo and found that he does truely only have half a heart developed. His blood pressure was a little lower than they wanted so they had to increase some medications. Then at 11:30pm last night they came to our room to tell us that they needed to put a respirator in because he retaining to much carbon dioxide. (We were not hoping for this. They had told me last night that I may get to nurse before the surgery, now I may not :'(

Today, they will check his brain and kidneys. We will also set the date for surgery. We will post more pictures and let you know what else we find out today. Keep praying. We will have a long road ahead of us but so far it has been easier then expected because of all the prayers and support we have.

We love you all and I know some of you have asked if you can come and visit (Susan, Gayle and Adina), you definitely can. And anyone else. Just let us know on the blog when would be best for you. I keep getting a lot of voice mail messages because I can't have it with me so here would be best.

Love to you all, Sal and Steph

Tuesday, April 04, 2006

Gonzalez's Heart

Gonzalez's Heart
Well Steph had her water broken at 10:25. After that her contractions started to get closer together.

Sal
Gonzalez's Heart
Good morning everyone. Sorry we did not bet back to you last night but it was a very very long day and I was too tired to come and update you all.

The doctor decided to stop the Pitocin at the end of the day. They put some stuff in my cervix to help soften it and prepare it for today. They started the Pitocin this morning at around 7am and the contractions have slowly started already. The plan is to break my water a little later on after my contractions become consistent.

The kids went to Ryan and Tammys to sleep last night. And Sal and I had a long night last night as our beds were extremely hard. I also had to get up every 2 hours to do the blood pressure thing and take a trip to the bathroom. We are very tired today.

Kelly picked up the kids this morning and brought them to mom, dad and Mattie. They will all come a little later. Yesterday was pretty long and hard for them but they did wonderful in the small space they had to play in all day.

We all prayed and willed so hard for this little bundle to stay in and wait to come out that it decided to wait another day. So started praying and willing it to come out today so we can start the rest of the process that we have to.

I know it is hard waiting and we really appreciate the support you are all giving, but if you could try and minimize the calls a little bit, that would help us to direct our energy to bringing this baby into the world. If you have questions, definitely ask on the blog. My family goes on there also and can help in answering questions as well. We will try and post the status more often or have our family post status. We can't wait to put a picture of our little love on the blog. Keep checking, it will be soon!!!!!

Love, Steph and Sal

Monday, April 03, 2006

Today is the big and we wanted you to know that you and your family are in our thoughts and prayers! The support you are receiving is awesome and just know that He is watching over all of you. May God Bless You and give you strength!

Love,
Krista, Ken & Family

Hugs to all!!

Sunday, April 02, 2006

Gonzalez's Heart
18 hours and counting...

We have a had a good relaxing weekend so far. Although, it has been very hard just relaxing and not doing much of anything. Friday night we had dinner with dad and Mattie and then they took Amber with them. Thanks for dinner guys. (If you want to see some of the pictures from dinner, you can go to their blog and check them out at MoogieandWally.blogspot.com).

Yesterday we went to the park with the kids and had my all time favorite for dinner, Lai Inn (Chinese). Many of you may remember, that is where Sal and I had our grooms dinner almost 9 years ago!!! It was the best meal I have had in years. It is my favorite place and I fully enjoyed it... (plus I was in great company. My family and greatest friend Kelly).

We watched a really good movie last night and then when we came to bed Ashley woke up and started throwing up. She threw up a lot and many times. Kelly and I were up until about 3am before Ashley was finally done.

So today Sal woke up with the kids and Kelly and I stayed in bed for along time. Ashley was feeling much better this morning so we think it must have been something she ate. We are going to take it extra easy with her just in case she is fighting being sick.

We have been talking through all the last minute details of tomorrow and are pretty much set. We still have to decide on a name. We are no where close. Well I better go for now. We are going over to Medallion to see mom, dad, Mattie and Amber. We will be leaving one of our vehicles there. Can't wait to blog to you all tomorrow. YEAH!!!!!!

Love to you all, Steph